EFFECTIVENESS OF A HOME-BASED INTEGRATED LISTENING SYSTEM FOR CHILDREN WITH AUTISM
The Spiral Foundation, Children’s Therapy of Woodinville, Kids Kount Therapy Services, OTA Watertown & Witwer Children’s Therapy are seeking children with high-functioning autism, ages 5-7 years, who will NOT be receiving Sensory Integration based occupational therapy over the next 6 months to participate in a home-based listening intervention research study using the iLs Focus program. For more information, contact Melissa Nilsen or Doreen Hunt at Children’s Therapy of Woodinville, (425) 486-7710.
ONLINE DISCUSSION GROUP FOR PARENTS OF ADULTS WITH ASD
Laura Dengler and Dr Kathryn Drager at Penn State University invite parents of individuals with an ASD to join an online discussion group. If you are a parent of an adult with ASD, consider participating. For more information, contact Laura at lfd116@psu.edu
TWINS AND AUTISM STUDY
Are you the parent of a twin with autism? Or are you an adult twin with autism? The University of Washington is seeking individuals aged 5-30 years to participate in a research study examining the social skills, thinking, and language of twin pairs in which at least one twin has a diagnosis of autism. All participants will be compensated for their time. To find out more, please call (206) 543-3096 or email twinbb@u.washington.edu
ASPERGER'S/HFA IN THE WORKPLACE STUDY
This study is being performed with the intent of writing a journal article for the management and psychological communities. Its aim is to explore and explain interactions with people on the spectrum to their management and peers.
Subjects should be:
- Adults over the age of 18
- Diagnosed with Asperger’s syndrome or high-functioning autism
- Employed in a job:
- That pays $60,000 a year or more OR
- Requires a master’s or doctoral degree
- Preferably living in the Pacific Northwest
Participants will be interviewed for approximately one or two hours, depending upon the amount of detail. In thanks, participants will receive either a $50 gift card to Barnes and Noble or a $50 gift card to Dilettante Chocolates or a $50 gift card to QFC.
To participate, please send e-mail to: aspergerdissertation@gmail.com
STUDY OF PARENTS OF ADULTS WITH ASD
Laura Dengler, a grad student working with Dr Kathryn Drager in the Dept of Communication Sciences and Disorders at Penn State University, is studying the experience of being a parent of an adult with an autism spectrum disorder through an online discussion group. If you are interested, contact Laura at lfd116@psu.edu.
PARENTAL USE OF COMPLEMENTARY AND ALTERNATIVE TREATMENTS FOR THEIR CHILDREN WITH AUTISM SPECTRUM DISORDERS ONLINE SURVEY
Sarah Hall is a doctoral student in the Department of Educational Psychology at Texas A&M University. She is studying the factors that influence parents to treat their children with autism spectrum disorder with complementary and alternative treatments. Contact Sarah at (409) 423-0170 or chi2blubug@tamu.edu. To take the survey, go to: https://www.surveymonkey.com/s/5FVB9YF
PARENT AND SCHOOL COLLABORATION ONLINE SURVEY
Meghan Burke is a doctoral student at Peabody College and the Vanderbilt Kennedy Center. She is studying parent-school collaboration as it relates to parental and child characteristics. Contact Meghan at Meghan.m.burke@vanderbilt.edu. The survey can be found at: http://tinyurl.com/2ednxtk
STUDY OF YOUNG CHILDREN’S SELF REGULATION
Researchers at Seattle Pacific University are looking for children ages 3 through 6 years, 11 months with Autism Spectrum Disorders for participation in a study of self-regulation, attention, and social skills. Children will participate in various activities over two, possibly three, sessions. Parents will complete questionnaires and short interviews. Teachers or other caregivers will be asked to fill out other questionnaires. They will ask children to follow three-step verbal directions and sit and do activities for 20-30 minute intervals (with breaks). Compensation for participation is provided. This study has been approved by the SPU Institutional Review Board through (January 14, 2012). For more information, contact Kathleen King , MA (206) 383-7612 or email kaking@spu.edu.
GENETICS OF AUTISM STUDY
Seattle Children’s is looking for volunteer families with children ages 2 to 35 who have been diagnosed with an autism spectrum disorder or are suspected of having an autism spectrum disorder or who have been diagnosted with a developmental disability/intellectual disability to participate in a research study to learn more about the genetics of autism. The study involves a blood draw from the child and both parents, if available. Based on the results of the blood test, the family may be invited to participate in a second part involving a review of the child’s development, family history, and standardized assessments of the child. Contact Elizabeth (Libby) Bliss at (206) 884-1488 or Elizabeth.bliss@seattlechildrens.org for more information.
SOCIAL SKILLS IN ADOLESCENT GIRLS WITH HFA AND ASPERGERS – FOCUS GROUP PARTICIPANTS WANTED
Meaghan McCollow is a doctoral student at the University of Washington researching social skills for adolescent girls with high-functioning autism (HFA) and Asperger’s. She is looking for participants for a one-time meeting for approximately 2 hours to discuss social skills for middle-school girls. She is looking for
-Parents of adolescent girls (ages 10-15, or 5th-9th grade) diagnosed with HFA/Asperger’s
-Adolescent girls who have been diagnosed with HRA/Asperger’s
-Middle School Special Education teachers who have taught at least one girl with autism
To contact Meaghan, email meaghm@gmail.com
EARLY DETECTION STUDY
The UW Autism Center is examining whether a commonly used autism screening tool works well for young children who have an older sibling with an ASD. Parents of children between 16 and 30 months complete mailed questionnaires and phone interview and may be asked to bring their child to the Autism Center for up to two comprehensive evaluations. Parents are compensated for their time and receive feedback about their child’s development. For more information, contact (877) 408-UWAC.
SOCIAL DEVELOPMENT STUDY
The UW Autism Center is assessing the growth of social and communication skills of infants who have an older sibling with as ASD. This study uses measures of behavior, eye gaze, and brain responses while infants play and watch pictures on a television screen. Children come to the Autism Center for several visits between the ages of 6 months and 36 months. Parents are compensated for their time and receive feedback about their child’s development. For more information, contact (877) 408-UWAC.
EARLY INTERVENTION SURVEY FOR PARENTS
Dr Jack Scott is studying parent-directed, home-based, behavioral programs for young children, 1-7 years of age, with autism spectrum disorders (ASD) with this online survey. For more information, contact jscott@fau.edu or (561) 251-4104. Survey: http://www.surveymonkey.com/s/EIBI
AUTISM CAREGIVER STUDY
Researchers at the University of Washington are looking for caregivers of children who have recently received a diagnosis of autism to participate in a 13- week study of an information & resource support program. The study will investigate the effects of this program on family and child outcomes such as family stress, well-being, and child development. Criteria to participate are: the child is preschool age or younger, the child has received a diagnosis or provisional diagnosis of an autism spectrum disorder, the child has received an autism diagnosis within the previous 4 weeks, and the family lives within a 30-mile radius of the Seattle area. Contact Jennifer Fung at (2060 683-0193 or jschlieif@u.washington.edu.
AUTISM AND INTERNET SURVEY
The survey from UCLA examines the relationship between the autism spectrum and Internet use, identity (including language use and neuro-diversity) , and visual perception. Completely anonymous for any child or adult at least 7 years old who is diagnosed, and/or who self-identifies as on the autism spectrum. Survey: http://www.surveymonkey.com/s/NNWDRT9
RESEARCH STUDY ON TEMPERAMENT-BASED PARENTAL APPROACH
Seeking parents and primary caregivers of children between six and twelve either diagnosed with ASD or typically developing for study on parental approach to addressing the needs of each child. Study comprised of surveys and interventions with a two month commitment. Gift card to Barnes and Noble for those who complete the study. For more information, contact Tara Malka, MA, EDM at tdm33@columbia.edu
SCIENCE IN AUTISM NEWSLETTER
The Association for Science in Autism Treatment (ASAT) quarterly newsletter, Science in Autism Treatment, is now available online! To sign up to be notified as issues are published, visit http://www.asatonline.org/signup ASAT is a not-for-profit organization dedicated to disseminating accurate, scientifically-valid information about autism education and treatment. For more information, please visit http://www.asatonline.org
BRAIN IMAGING STUDY OF SOCIAL PROCESSING IN ADULTS
Have you been diagnosed with Autism or Asperger’s? Are you between 18 and 45 years of age? A research team led by Dr. Kleinhans at the University of Washington is conducting research on face processing and brain functioning in adults. To help understand these areas, They are inviting adults between the ages of 18 and 45 years old with Autism or Asperger’s to participate in a research study. Participation in this study involves behavioral tests and MRI measures of brain functioning and brain structure. Individuals who participate will receive $125 for 2 visits to the UW campus, and will be helping understand how brain structure and function are involved in typical and atypical development. If you are between 18 and 45 years of age with Autism or Asperger’s and you are interested in participating in this study, please contact their research coordinator at (206) 221-6722.
RESEARCH STUDY ON SPOKEN LANGUAGE SEEKS CHILDREN AGES 4-8
OHSU's Center for Spoken Language Understanding (CSLU) is studying the differences in communication skills, social skills and mental abilities of children with autism spectrum disorders, language impairments, and typical development. Participation involves about 6-7 sessions at OHSU's OGI campus in Beaverton, Oregon. Benefits of Participation are parents can obtain scores on their child's standardized cognitive and language tests, parents can obtain results of all questionnaires completed, parents receive $10 per session on behalf of their child (paid at end) and children receive a prize at each visit. If you would like to participate or want further information, please contact Rachel Coulston, (503) 748-1602, communicationstudy@cslu.ogi.edu
AUTISM AND HEALTHCARE SETTINGS
Whitney Hafer, a graduate student at WSU Vancouver, is studying the experiences of children with autism and their families with health care settings. Please consider participating in her survey. She can be reached at whitneyhafer@ gmail.com
Survey: http://www.zoomeran g.com/Survey/ WEB22AEN7FRDEL
AUTISM SAFETY SURVEY
Injuries are the leading cause of death and disability in children. Children with autism have higher rates of injury, emergency room visits, and hospital admissions than do typical children. The perceptions and insight of parents and caregivers is requested to bring forth safety concerns and issues to help keep children with autism safe. www.surveymonkey.com/autismsafety/
CAUSES OF AUTISM STUDY
The University of Washington invites you to participate in finding the most common causes of autism focusing on families with just one child with autism. Participation requires families to have one child with autism age four or older and both biological parents willing to participate. For more information about this study, called the Simon Simplex Collection Project, visit http://depts.washington.edu/uwautism/research/simonssimplexproject.html or contact
Tracey Ward at (206) 543-5941, (800) 994-9701, or tracward@u.washington.edu
SEATTLE CHILDREN’S AUTISM GENETICS STUDY
Seattle Children's is looking for volunteer families with children ages 2 to 17 who have been diagnosed with an autism spectrum disorder (ASD) or are suspected of having an autism spectrum disorder to participate in a research study to learn more about the genetics of autism. The goals of this study are to identify genes that affect the development of autism. For more information about this study, please contact Elizabeth Bliss at (206) 884-1488 or elizabeth.bliss@seattlechildrens.org Principal Investigator: Dr. Raphael Bernier (206) 685-7585.
GRANDPARENT SURVEY
The Interactive Autism Network is surveying grandparents of children with autism spectrum disorders regarding their support of families and their experiences. Visit http://www.iancommunity.org/cs/ian_research/grandparent_ survey
A STUDY OF AUTISM GENETICS EXPLORATION (SAGE)
Researchers at Seattle Children’s are looking for volunteer families with children ages 2 to 17 who have been diagnosed with an autism spectrum disorder (ASD) or are suspected of having an autism spectrum disorder to participate in a research study to learn more about the genetics of autism. The goal of this study is to identify genes that affect the development of autism. In the first part of the study a small sample of blood (about 30 mLs, or four teaspoons) will be drawn from the child and both parents, if available. DNA from the blood sample will be analyzed and if the family shows a particular pattern of DNA they will be invited to participate in the second part of the study. The second part of the study includes standardized assessments of the child’s social, language, and behavioral functioning, questions about the child’s development, family and medical history. Families will be compensated $50 for each visit. If interested please contact Libby Bliss at (206) 884-1488 or elizabeth.bliss@seattlechildrens.org
SURVEY STUDY ON THE NUTRITIONAL AND GASTROINTESTINAL INFLUENCES ON BEHAVIORAL PATTERNS IN CHILDREN WITH AUTISM SPECTRUM DISORDER
Researchers at Bastyr University in Kenmore are looking for parents of ASD children ages 5-12 years old and a diagnosis of ASD for 3 or more years to participate in a survey study on the nutritional and gastrointestinal influences on behavioral patterns in children with ASD. The survey can be completed online and should take 30-45 minutes. For questions, please contact Bethany at Bethany.card@bastyr.edu. To take the survey, visit http://www.surveymonkey.com/s.aspx?sm=CGVavwXMsCAGQG5c_2b2bEQA_3d_3d
EARLY CONNECTIONS STUDY
Researchers at the University of Washington want to learn more about the benefits of early intervention with young siblings of children with autism spectrum disorders (ASD). The information gained in this study may improve methods of early detection and intervention for infants who may be at risk for developing autism and lead to better outcome for these young children and their families. (800) 994-9701 or www.depts.washington.edu/uwautism/
THE SIMONS SIMPLEX COLLECTION
The Simons Simplex Collection (SSC) project is a new initiative to search for the causes of autism. This study is focused on families with just one child with autism, called simplex families, which will provide insight into the most common and unexplained form of autism. (800) 994-9701 or www.depts.washington.edu/auautism/
HAS YOUR CHILD BEEN DIAGNOSED WITH HIGH-FUNCTIONING AUTISM OR ASPERGER’S SYNDROME?
Researchers at Western Washington University are conducting a study involving children ages 8-15 who have a diagnosis of high-functioning autism or Asperger’s Syndrome. The study involves a one hour visit from WWU’s researcher at a location of your choice (home, library, etc.) Parents are asked to fill out two questionnaires about their child while children will take a brief IQ test and participate in a short computer game. The goal of the study is to observe inherent social attitudes in this group of children. Families will be compensated $10 for 1 hour of their time. Contact Ashley: (253) 720-8943 or aeruggles@gmail.com.
EARLY STEPS STUDY FOR 12 TO 24 MONTH OLDS
The Early Steps Study at the University of Washington Autism Center is a randomized clinical evaluation of a new form of intervention for young children, 12-24 months old, with early signs of autism. Families will benefit by promptly receiving free clinical services, consultations from clinically trained research staff and referrals for intervention services in the community. Qualifying families will receive up to 4 evaluations over 2-5 years. For more detail, call Emilie Dupont (206) 616-2854 or esstudy@u.washington.edu
CLINICAL TRIAL OF STX209 FOR TREATMENT OF IRRITABILITY IN ASD
Seattle Children’s Hospital is looking for children and adolescents ages 6 through 17 years with Autism Spectrum Disorders for participation in a 14-week open-label, flexible-dose evaluation of the safety and tolerability of STX209 for treatment of irritability in this population. No cost for medications or evaluations. All participants will receive the active medication. All risks and benefits will be thoroughly explained. Participation is voluntary. Bryan King, MD, is the Principal Investigator. To participate, contact Denise Unis, MA (206) 884-1168 or denise.unis@seattlechildrens.org
SURVEY OF FEEDING AND DIGESTIVE PROBLEMS IN CHILDREN WITH ASPERGER SYNDROME: COMPARISON WITH NON-ASD SIBLINGS
The purpose of this survey is to study feeding and digestive problems among children with Asperger Syndrome and their siblings. The study is being conducted by Dr Richard Schwartz, MD, pediatrician and professor of pediatrics at Virginia commonwealth University, Inova Fairfax Hospital for Children. He can be contacted at rhs738@aol.com The link to the survey is
https://fs19.formsite.com/vbadalyan/form977322282/secure_index.html
COPING STRATEGIES IN FAMILIES WITH AUTISM
Marissa Fappiano is a student at Saint Joseph’s University who is studying how families cope with having a child with Autism. She is studying coping strategies. Participation in this study involves completing a 30 minute online survey. To contact Marissa, please email her at marissafappiano@gmail.com.
To take the survey, visit https://www. surveymonkey. com/s.aspx? sm=OhYaCErHhJTdI 6La0Vty1Q_ 3d_3d
UW BULLYING STUDY LOOKING FOR CHILDREN WITH AUTISM
Pei-Yu Chen and Dr. Ilene Schwartz at UW are looking for children with a Autism Spectrum Disorder between 8 and 11 years of age to participate in a study that explores experiences with bullying. Study involves completion of surveys for child, parent, and the child’s teacher. For more information, contact Pei-Yu Chen at (206) 221-3060 or pychen@u.washington.edu
RESEARCH ON COPING WITH THE STRESSES OF PARENTING A CHILD WITH AUTISM
Yngve Monsson is a graduate student at the University of Kansas completing her Ph.D. in Clinical Psychology and a parent of a 5-year-old girl with autism. She is conducting an online survey for parents of children with autism to explore how parents cope with the stressors to better design support programs for families. For the link to the online survey, contact Yngve at monsson@ku.edu
GESTURE STUDY SEEKS HOME VIDEO OF KIDS BIRTHDAY PARTIES
Jason Wallin, a graduate student at Central Washington University, is looking for video of birthday parties for a new study of children’s gestures. He is looking for 1st, 2nd, and/or 3rd birthday parties from children with autism spectrum disorders, children with other developmental disabilities and children with typical development. For more information, visit www.childgesture.org or contact Jason by phone (509) 963-2244 or email WallinJ@cwu.edu
ACADEMIC AND SOCIAL DIFFICULTIES AT UNIVERSITY FOR STUDENTS WITH AUTISM
Allison Marks is a graduate occupational therapy student at Quinnipiac University in Hamden, CT. For her graduate thesis she is doing a research project with the aim of creating an intervention for college students on the autism spectrum to assist in understanding the unique social norms of a college campus. Part of the research identifies academic and social situations that are particularly difficulty or stressful for this population at the university. This study involves short online surveys occurring over a few weeks. If interested, contact Allison at Allison.mars@quinnipiac.edu or (914) 557-8842
RESEARCH STUDY FOR ASPERGER YOUNG ADULTS AND THEIR PARENTS
This is a research study about the behavioral impact of Asperger Syndrome (AS) on young adults with the condition aged between 18 and 34 and their parents. This study is being conducted by three Trinity College, Dublin, Ireland, psychology students under the supervision of a Registered Psychologist. The time required is approximately 25 minutes for each survey. Contact Aoife Mai Chinneide at nichinna@tcd.ie if you have questions.
AGE 18-34 SURVEY: http://www.surveymonkey.com/s.aspx?sm=JQkrnmWKUw_2fafB0ZArFOHg_3d_3d
PARENT SURVEY: http://www.surveymonkey.com/s.aspx?sm=JOB_2bNRd4ZThIq0FZ1kU3YQ_3d_3d
BABIES NEEDED FOR AUTISM STUDY
The University of Washington Autism Center is looking for infants with an older sibling with autism for a study on the developmental disorder. This is a brain-imaging study to examine changes in children’s rains and behavior that may signal the onset of autistic symptoms. Families interested in participating or those wanting more information can contact (800) 994-9701 or riverav@u.washington.edu. More information about the Infant Brain Imaging Study can be found at http://Ibis-network.org/default.html
DO YOU HAVE HIGH-FUNCTIONING AUTISM, ASPERGER’S SYNDROME, OR PDD-NOS?
Are you between the ages of 21-75? Are your cognitive abilities within the low average to above average range? Would you be interested I learning more about yourself and how you feel about relationships and sexuality? Then, you are eligible to participate in a research study conducted by researchers at the North Shore-LIJ Center for Autism and the University of New Brunswick. Study involve completion of an online questionnaire at www.unbstudy.com that takes 45-75 minutes to complete. Contact Shana Nichols, PhD at (516) 802-8600 for more information.
NATIONAL STUDY OF LIQUID VITAMIN/MINERAL SUPPLEMENT FOR CHILDREN AND ADULTS WITH AUTISM SPECTRUM DISORDERS
12 week treatment study
Double-blind, placebo-controlled
Open to children and adults ages 3-60 years
Must have certified diagnosis of autism spectrum disorder (autism, PDD-NOS, or Asperger’s)
Includes behavioral assessments only (no blood tests)
For information contact http://autism.asu.edu
STUDY OF GUT BACTERIA AND YEAST IN CHILDREN AND ADULTS WITH AUTISM
Seeking participants for a research study investigating the amount of intestinal bacteria and yeast. Study will involve
Answering short questionnaires (about 30 minutes time)
One time collection of a stool sample
Each participant will receive a $50 gift certificate to Target
If interested, fill out and return screening application at http://autism.asu.edu
DO YOU HAVE A CHILD DIAGNOSED WITH AN AUTISM SPECTRUM DISORDER WHO HAS AN INFANT SIBLING?
The Infant Brain Imaging Study (IBIS) at UW & Children’s Hospital is looking for participants. The aim is to identify very early brain features that may be characteristic of infants at risk for autism. Seeking families who have a child with an autism spectrum disorder and an infant sibling six months old or younger. Developmental evaluations and MRI scans of your infant’s brain will be completed at six, twelve, and 24 months of age. Compensation for participation is provided and travel arrangements for families traveling from further distances.
Contact the study coordinator at (800) 994-9701 or emh2@u.washington.edu
REPETITIVE BEHAVIORS IN AUTISM
Children’s Hospital is holding a treatment study of repetitive behaviors in autism. To be a part of this study, contact the Child Psychiatry Research Team at (206)987-3399 or email leslie.pierson@seattlechildrens.org
AUTISM STUDY LOOKING AT CHILD BEHAVIOR AND ROUTINES
Parents of children with an Autism Spectrum Disorder, 6-18 years old, are invited to participate in a thesis/dissertation study looking at their child’s behaviors and routines, as well as family interactions, parent practices, and stress. $5/survey will be donated to research autism treatments. Contact Stephanie Bader at Stephanie.bader@usm.edu or (845) 492-1986 to participate. Specify where you would like to fill out the online or paper version of the study.
TEACHTOWN STUDY
TeachTown was awarded a grant by the Department of Education to design and develop a computer-assisted education and treatment program for children with Autism and Asperger’s Syndrome. They are looking for parents and professionals working with children with autism or Asperger’s Syndrome to attend a 2-hour presentation in Seattle and complete questionnaires about the material presented. Contact TeachTown at (206) 366-5585 or (800) 6447811 or research@teachtown.com
AUTISM AND HUMAN COMPUTER INTERACTION SURVEY
This work in looking at usability and design issues surrounding software and technology designed for people with autism spectrum disorders (ASD). Participants can be people over 18 years old with ASD, parents or family members of children with ASD, or professionals/teachers who work with children with ASD. The survey is located at https://catalysttools.washington.edu/survey/cyputnam/34194
LANGUAGE ACQUISITION IN AUTISM SPECTRUM DISORDERS
Amanda Worek in the Lab for Developmental Studies at Harvard University under Professor Jesse Snedeker is researching language acquisition in autism spectrum disorders. Currently seeking participants who are between age 5 and 10 years, on the autism spectrum and have exceptional language skills. Contact Amanda at (617) 384-8357 or aworek@wjh.harvard.edu .
AUTISM TISSUE PROGRAM
This donation program plays a critical role in research efforts focused on finding treatments and cures for autism. Without tissue, studies that could lead to the treatment and eventual cure for autism spectrum disorders cannot be done. For more information call toll free (877) 333-0999 or visit www.memoriesofhope.org .