GRANDPARENT SURVEY
The Interactive Autism Network is surveying grandparents of children with autism spectrum disorders regarding their support of families and their experiences. Visit http://www.iancommunity.org/cs/ian_research/grandparent_ survey
A STUDY OF AUTISM GENETICS EXPLORATION (SAGE)
Researchers at Seattle Children’s are looking for volunteer families with children ages 2 to 17 who have been diagnosed with an autism spectrum disorder (ASD) or are suspected of having an autism spectrum disorder to participate in a research study to learn more about the genetics of autism. The goal of this study is to identify genes that affect the development of autism. In the first part of the study a small sample of blood (about 30 mLs, or four teaspoons) will be drawn from the child and both parents, if available. DNA from the blood sample will be analyzed and if the family shows a particular pattern of DNA they will be invited to participate in the second part of the study. The second part of the study includes standardized assessments of the child’s social, language, and behavioral functioning, questions about the child’s development, family and medical history. Families will be compensated $50 for each visit. If interested please contact Libby Bliss at (206) 884-1488 or elizabeth.bliss@seattlechildrens.org
SURVEY STUDY ON THE NUTRITIONAL AND GASTROINTESTINAL INFLUENCES ON BEHAVIORAL PATTERNS IN CHILDREN WITH AUTISM SPECTRUM DISORDER
Researchers at Bastyr University in Kenmore are looking for parents of ASD children ages 5-12 years old and a diagnosis of ASD for 3 or more years to participate in a survey study on the nutritional and gastrointestinal influences on behavioral patterns in children with ASD. The survey can be completed online and should take 30-45 minutes. For questions, please contact Bethany at Bethany.card@bastyr.edu. To take the survey, visit http://www.surveymonkey.com/s.aspx?sm=CGVavwXMsCAGQG5c_2b2bEQA_3d_3d
EARLY CONNECTIONS STUDY
Researchers at the University of Washington want to learn more about the benefits of early intervention with young siblings of children with autism spectrum disorders (ASD). The information gained in this study may improve methods of early detection and intervention for infants who may be a t risk for developing autism and lead to better outcome for these young children and their families. (800) 994-9701 or www.depts.washington.edu/uwautism/
THE SIMONS SIMPLEX COLLECTION
The Simons Simplex Collection (SSC) project is a new initiative to search for the causes of autism. This study is focused on families with just one child with autism, called simplex families, which will provide insight into the most common and unexplained form of autism. (800) 994-9701 or www.depts.washington.edu/auautism/
HAS YOUR CHILD BEEN DIAGNOSED WITH HIGH-FUNCTIONING AUTISM OR ASPERGER’S SYNDROME?
Researchers at Western Washington University are conducting a study involving children ages 8-15 who have a diagnosis of high-functioning autism or Asperger’s Syndrome. The study involves a one hour visit from WWU’s researcher at a location of your choice (home, library, etc.) Parents are asked to fill out two questionnaires about their child while children will take a brief IQ test and participate in a short computer game. The goal of the study is to observe inherent social attitudes in this group of children. Families will be compensated $10 for 1 hour of their time. Contact Ashley: (253) 720-8943 or aeruggles@gmail.com.
STUDY OF YOUNG CHILDREN’S SELF-REGULATION
Researchers at Seattle Pacific University are looking for children ages 3 through 6 years, 11 months, with Autism Spectrum Disorders and typically-developing children for participation in a study of self-regulation, attention, and social skills. Children will participate in various activities over two sessions. Parents will complete questionnaires and short interviews. Teachers or other caregivers will be asked to fill out other questionnaires. We will ask children to follow three-step verbal directions and sit and do activities for 20-30 minute intervals (with breaks). Compensation for participation is provided. This study has been approved by the Seattle Pacific University Institutional Review Board through July 10, 2010. For more information, contact Rachel Montague, MA, (206) 579-5583 or montar@spu.edu.
EARLY STEPS STUDY FOR 12 TO 24 MONTH OLDS
The Early Steps Study at the University of Washington Autism Center is a randomized clinical evaluation of a new form of intervention for young children, 12-24 months old, with early signs of autism. Families will benefit by promptly receiving free clinical services, consultations from clinically trained research staff and referrals for intervention services in the community. Qualifying families will receive up to 4 evaluations over 2-5 years. For more detail, call Emilie Dupont (206) 616-2854 or esstudy@u.washington.edu
CLINICAL TRIAL OF STX209 FOR TREATMENT OF IRRITABILITY IN ASD
Seattle Children’s Hospital is looking for children and adolescents ages 6 through 17 years with Autism Spectrum Disorders for participation in a 14-week open-label, flexible-dose evaluation of the safety and tolerability of STX209 for treatment of irritability in this population. No cost for medications or evaluations. All participants will receive the active medication. All risks and benefits will be thoroughly explained. Participation is voluntary. Bryan King, MD, is the Principal Investigator. To participate, contact Denise Unis, MA (206) 884-1168 or denise.unis@seattlechildrens.org
SURVEY OF FEEDING AND DIGESTIVE PROBLEMS IN CHILDREN WITH ASPERGER SYNDROME: COMPARISON WITH NON-ASD SIBLINGS
The purpose of this survey is to study feeding and digestive problems among children with Asperger Syndrome and their siblings. The study is being conducted by Dr Richard Schwartz, MD, pediatrician and professor of pediatrics at Virginia commonwealth University, Inova Fairfax Hospital for Children. He can be contacted at rhs738@aol.com The link to the survey is
https://fs19.formsite.com/vbadalyan/form977322282/secure_index.html
COPING STRATEGIES IN FAMILIES WITH AUTISM
Marissa Fappiano is a student at Saint Joseph’s University who is studying how families cope with having a child with Autism. She is studying coping strategies. Participation in this study involves completing a 30 minute online survey. To contact Marissa, please email her at marissafappiano@gmail.com.
To take the survey, visit https://www. surveymonkey. com/s.aspx? sm=OhYaCErHhJTdI 6La0Vty1Q_ 3d_3d
UW BULLYING STUDY LOOKING FOR CHILDREN WITH AUTISM
Pei-Yu Chen and Dr. Ilene Schwartz at UW are looking for children with a Autism Spectrum Disorder between 8 and 11 years of age to participate in a study that explores experiences with bullying. Study involves completion of surveys for child, parent, and the child’s teacher. For more information, contact Pei-Yu Chen at (206) 221-3060 or pychen@u.washington.edu
RESEARCH ON COPING WITH THE STRESSES OF PARENTING A CHILD WITH AUTISM
Yngve Monsson is a graduate student at the University of Kansas completing her Ph.D. in Clinical Psychology and a parent of a 5-year-old girl with autism. She is conducting an online survey for parents of children with autism to explore how parents cope with the stressors to better design support programs for families. For the link to the online survey, contact Yngve at monsson@ku.edu
GESTURE STUDY SEEKS HOME VIDEO OF KIDS BIRTHDAY PARTIES
Jason Wallin, a graduate student at Central Washington University, is looking for video of birthday parties for a new study of children’s gestures. He is looking for 1st, 2nd, and/or 3rd birthday parties from children with autism spectrum disorders, children with other developmental disabilities and children with typical development. For more information, visit www.childgesture.org or contact Jason by phone (509) 963-2244 or email WallinJ@cwu.edu
ACADEMIC AND SOCIAL DIFFICULTIES AT UNIVERSITY FOR STUDENTS WITH AUTISM
Allison Marks is a graduate occupational therapy student at Quinnipiac University in Hamden, CT. For her graduate thesis she is doing a research project with the aim of creating an intervention for college students on the autism spectrum to assist in understanding the unique social norms of a college campus. Part of the research identifies academic and social situations that are particularly difficulty or stressful for this population at the university. This study involves short online surveys occurring over a few weeks. If interested, contact Allison at Allison.mars@quinnipiac.edu or (914) 557-8842
RESEARCH STUDY FOR ASPERGER YOUNG ADULTS AND THEIR PARENTS
This is a research study about the behavioral impact of Asperger Syndrome (AS) on young adults with the condition aged between 18 and 34 and their parents. This study is being conducted by three Trinity College, Dublin, Ireland, psychology students under the supervision of a Registered Psychologist. The time required is approximately 25 minutes for each survey. Contact Aoife Mai Chinneide at nichinna@tcd.ie if you have questions.
AGE 18-34 SURVEY: http://www.surveymonkey.com/s.aspx?sm=JQkrnmWKUw_2fafB0ZArFOHg_3d_3d
PARENT SURVEY: http://www.surveymonkey.com/s.aspx?sm=JOB_2bNRd4ZThIq0FZ1kU3YQ_3d_3d
BABIES NEEDED FOR AUTISM STUDY
The University of Washington Autism Center is looking for infants with an older sibling with autism for a study on the developmental disorder. This is a brain-imaging study to examine changes in children’s rains and behavior that may signal the onset of autistic symptoms. Families interested in participating or those wanting more information can contact (800) 994-9701 or riverav@u.washington.edu. More information about the Infant Brain Imaging Study can be found at http://Ibis-network.org/default.html
QUALITY OF LIFE FOCUS GROUPS FOR TEENS WITH AUTISM AND ASPERGERS
How are adolescents with autism affected in terms of quality of life? Parents and teens are asked to participate in small groups involving attending 3 meetings over the course of about one year. Each meeting will take about 1-2 hours. You will receive $50 for each group meeting that you attend. Contact (206) 884-1488 or email Elizabeth.bliss@seattlechildren.org. Principal Investigator: Felice Orlich, PhD (206) 987-8957
QUALITY OF LIFE STUDY FOR CHILDREN AND TEENS WITH AUTISM
The University of Washington is looking for volunteer families with children ages 2 to 17.6 years who have been diagnosed with an autism spectrum disorder to participate in a quality of life study. You will be asked to complete a variety of questionnaires related to quality of life and your child’s behavioral functioning. Contact (206) 884-1488 or email Elizabeth.bliss@seattlechildrens.org. Principal Investigator: Felice Orlich, PhD (206) 987-8957
DO YOU HAVE HIGH-FUNCTIONING AUTISM, ASPERGER’S SYNDROME, OR PDD-NOS?
Are you between the ages of 21-75? Are your cognitive abilities within the low average to above average range? Would you be interested I learning more about yourself and how you feel about relationships and sexuality? Then, you are eligible to participate in a research study conducted by researchers at the North Shore-LIJ Center for Autism and the University of New Brunswick. Study involve completion of an online questionnaire at www.unbstudy.com that takes 45-75 minutes to complete. Contact Shana Nichols, PhD at (516) 802-8600 for more information.
PORPHYRINS STUDY ENROLLING THROUGH FEBRUARY
Mercury and some other environmental toxins are known to cuase elevated urinary porphyrin levels. Caregivers willing to collect urine samples from their autistic and non-autistic children ages 2-12 year are needed; siblings are allowed to participate. Results will be provided to caregivers of all participants. Call (206) 525-8012 for more information.
NATIONAL STUDY OF LIQUID VITAMIN/MINERAL SUPPLEMENT FOR CHILDREN AND ADULTS WITH AUTISM SPECTRUM DISORDERS
12 week treatment study
Double-blind, placebo-controlled
Open to children and adults ages 3-60 years
Must have certified diagnosis of autism spectrum disorder (autism, PDD-NOS, or Aspeger’s)
Includes behavioral assessments only (no blood tests)
For information contact http://autism.asu.edu
STUDY OF GUT BACTERIA AND YEAST IN CHILDREN AND ADULTS WITH AUTISM
Seeking participants for a research study investigating the amount of intestinal bacteria and yeast. Study will involve
Answering short questionnaires (about 30 minutes time)
One time collection of a stool sample
Each participant will receive a $50 gift certificate to Target
If interested, fill out and return screening application at http://autism.asu.edu
DO YOU HAVE A CHILD DIAGNOSED WITH AN AUTISM SPECTRUM DISORDER WHO HAS AN INFANT SIBLING?
The Infant Brain Imaging Study (IBIS) at UW & Children’s Hospital is looking for participants. The aim is to identify very early brain features that may be characteristic of infants at risk for autism. Seeking families who have a child with an autism spectrum disorder and an infant sibling six months old or younger. Developmental evaluations and MRI scans of your infant’s brain will be completed at six, twelve, and 24 months of age. Compensation for participation is provided and travel arrangements for families traveling from further distances.
Contact the study coordinator at (800) 994-9701 or emh2@u.washington.edu
REPETITIVE BEHAVIORS IN AUTISM
Children’s Hospital is holding a treatment study of repetitive behaviors in autism. To be a part of this study, contact the Child Psychiatry Research Team at (206)987-3399 or email leslie.pierson@seattlechildrens.org
AUTISM STUDY LOOKING AT CHILD BEHAVIOR AND ROUTINES
Parents of children with an Autism Spectrum Disorder, 6-18 years old, are invited to participate in a thesis/dissertation study looking at their child’s behaviors and routines, as well as family interactions, parent practices, and stress. $5/survey will be donated to research autism treatments. Contact Stephanie Bader at Stephanie.bader@usm.edu or (845) 492-1986 to participate. Specify where you would like to fill out the online or paper version of the study.
TEACHTOWN STUDY
TeachTown was awarded a grant by the Department of Education to design and develop a computer-assisted education and treatment program for children with Autism and Asperger’s Syndrome. They are looking for parents and professionals working with children with autism or Asperger’s Syndrome to attend a 2-hour presentation in Seattle and complete questionnaires about the material presented. Contact TeachTown at (206) 366-5585 or (800) 6447811 or research@teachtown.com
AUTISM AND HUMAN COMPUTER INTERACTION SURVEY
This work in looking at usability and design issues surrounding software and technology designed for people with autism spectrum disorders (ASD). Participants can be people over 18 years old with ASD, parents or family members of children with ASD, or professionals/teachers who work with children with ASD. The survey is located at https://catalysttools.washington.edu/survey/cyputnam/34194
LANGUAGE ACQUISITION IN AUTISM SPECTRUM DISORDERS
Amanda Worek in the Lab for Developmental Studies at Harvard University under Professor Jesse Snedeker is researching language acquisition in autism spectrum disorders. Currently seeking participants who are between age 5 and 10 years, on the autism spectrum and have exceptional language skills. Contact Amanda at (617) 384-8357 or aworek@wjh.harvard.edu .
AUTISM TISSUE PROGRAM
This donation program plays a critical role in research efforts focused on finding treatments and cures for autism. Without tissue, studies that could lead to the treatment and eventual cure for autism spectrum disorders cannot be done. For more information call toll free (877) 333-0999 or visit www.memoriesofhope.org .